Please join us in celebrating the second annual Moebius Syndrome Awareness day to be observed worldwide on January 24, 2012.
The first ever Moebius Syndrome Awareness Day held last year was a resounding success and was celebrated on every continent, including popular social networking sites Facebook and Twitter.
January 24 is a significant date in the history of Moebius Syndrome as it is the birth date of Professor Paul Julius Mobius, the neurologist who first diagnosed the disorder in 1888.
Once again the three Moebius Syndrome organizations – The Many Faces Of Moebius Syndrome (www.manyfacesofmoebiussyndrome.com) The Moebius Syndrome Foundation (www.moebiussyndrome.com) and the Moebius Research Trust (www.moebiusresearchtrust.org) – have joined forces in full support of this worthy cause.
If you were to gather a group of adults, like myself, who have Moebius Syndrome in a room – or even parents of children who have it – you'll find that most of us would tell you tales of how we thought that we were the only ones in the world with it, how this sometimes made us stick out in society like the proverbial sore thumb, and what joy and elation we felt when we met others whose lives had also been affected by it for the very first time.
The aim of having a Moebius Syndrome Awareness day is, of course, to spread awareness about Moebius Syndrome but it is also about celebrating the lives of the parents and children, the mothers and fathers, and the brothers and sisters whose lives have been both touched and affected by it.
This year we hope to make Moebius Syndrome Awareness Day an even bigger and better success than it was last year. - we want to colonize Facebook, take-over Twitter, conquer the world and paint it purple in support of Moebius Syndrome awareness for a day!
We want the world to know what Moebius Syndrome is; we want the world to know that even though we might look different, we are exactly the same as everyone else who lives in it; we want the world to know that we have the same needs and wants, hopes and dreams as everybody else; we want the world to know that our smiles come from our hearts, but despite this laughter still comes from our mouths.
So on January 24, 2012 please wear purple, read up on Moebius Syndrome if you have never heard of it, make others aware of it, or just give someone with Moebius Syndrome a smile or a hug and tell them how special they are.